What is Patient & Public Involvement?

It is an active partnership between patients, families or carers, and members of the public with researchers that influences and shapes research.

This could include:

  • Offering opinions on potential research questions
  • Helping researchers develop a funding bid
  • Being a member of a research project steering group
  • Commenting on and developing materials such as patient information sheets, interview guides or questionnaires
  • Undertaking interviews with research participants
  • Assisting with sharing research findings and getting research evidence into practice

Want to Involve People in Your Research?

If you’re a researcher looking to involve people in your research, please contact us to tell us more, and we’ll do our best to link you with patients and members of the public who may wish to be involved.

Email us

Who Can Get Involved?

A range of people from across the UK with wide experience, skills and knowledge from interest or lived experience of organ donation or transplantation. They are a diverse (age, ethnicities, and backgrounds) working together alongside clinicians, health workers and academics from across the network to produce research.

We have opportunities for members of the public from all walks of life, service users, carers, patients, and families to get involved in our research activities.

We offer training so you can learn new skills, make friends, and make a difference supporting research that improves the provision of organ donation and transplantation across the UK.

To get involved you don’t need any specific background or education or previous knowledge or experience. All people’s life experiences are important and valued. You just need an interest in health research, some time to spare and a willingness to share your thoughts and ideas with us.

To join our PPIE community please complete our mailing list form below and tick the PPIE box.

Follow the link to access our recommended PPIE training resources.

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