Welcome from our Co-Director

For those of you who are not aware of the network, this is an all-organ initiative between clinical, patient, lay and scientific representatives, to support research in organ donation and transplantation, to encourage and develop strong collaborations, for patient benefit. We have an Executive team and Board, with representation nationally and across organs, and a network representative in each transplanting centre. We have undertaken a survey to examine barriers to research in the UK, both for researchers and for patients. The next phase of work will be to begin to address some of the barriers.

We now seek funding to undertake work that will build network infrastructure, and research platforms, including the development of a recipient bioresource to partner with the successful donor biobank, QUOD. We are working with NHS Blood and Transplant to establish linkage of data from cancer registry and other national databases to complement the transplant registry data and provide more detailed information about patient outcomes.