The PPIE support we can offer to researchers, clinicians, allied health professionals, and others in their research and other work, is invaluable.
We have undertaken a survey to examine barriers to research in the UK, both for researchers and for patients. The next phase of work will be to begin to address some of the barriers.
Key to this is undertaking a patient-led priority setting exercise to identify areas for research.
We hope that all interested colleagues and patients will join us both in these discussions and in transforming them into reality to be able to make a difference to organ donation and transplantation, and lives of all those affected by it.
We will be publishing the outcome of this exercise – one that will demonstrate a powerful message that the Network is patient-focused, serious and credible about its work and the difference it can make.
We continue to seek funding and sponsorship to undertake work that will further build the network infrastructure, research platforms, and support our PPIE work.
Further details of our work in these areas will be published on this website.
We are working with NHS Blood and Transplant and other national databases to complement the transplant registry data and provide more detailed information about patient outcomes.
We look forward to working with you all and we always welcome more people joining our Network.
We would also like to thank the British Transplantation Society for their generous support to fund the creation of this website.